Other than that today was just alright... it seemed to be going very well in the beginning but then things got really frustrating. This morning her doctor told me he feels she is ready to be taken off the CPAP!!! Woohoo! I wasn't expecting it this early but he is going to do it tomorrow (November 1st). I really, really, really want this to work but I am preparing myself for disappointment. I know he wouldn't do it if he didn't think she was ready but the pessimist in me can't help but expect that she will end up back on the CPAP within a couple of days. I guess the NICU does that to you.
Her doctor is also hoping that she will be on bottles in about two and half weeks. That was pretty exciting but the rule of thumb is that the baby needs to weigh about 3 lb 5 oz before the bottle. He said that he may start her a bit before that since she is gaining a little slower than average but would like her to be somewhat close. I was very hopeful, assuming that when I went in later tonight she would be up an ounce. Not the case, she was down over half an ounce. Again. She has been sitting at 2 lb 9 oz for the longest time. She had gone up to 2 lb 10 oz again on Sunday night and then back down to 2 lb 9 oz tonight for the third time. It starts to feel like she will never gain a substantial amount of weight. And then the respiratory therapist told me not to be surprised if she loses weight once she comes off the CPAP since she'll be doing more work herself and burning more calories. Wonderful. It's so sad to me that if I was still pregnant she would easily be over 4 lbs by now.
And to add to all this, Josh has a cold. He couldn't come see her in her costume so he was really bummed. And then that gives me about a 0% chance of not getting it, meaning I won't be able to go see her for at least 3 or 4 days which is a pretty horrible feeling. I don't know what I am going to do with myself during those couple of days. I'm dreading waking up one morning with a sore throat :(
So nothing truly terrible happened today and we do have some good things to look forward to but sometimes it is so hard not to get caught up in the little things. I can't stand the back and forth of her weight. It drives me crazy. And if I get sick I will be so upset but we shall see. For now I'm keeping my fingers crossed I don't get Josh's cold (not gonna happen) and that Cameron transitions to the CPAP wonderfully!!!
What an adorable giraffe! I hope you don't get sick so you can continue to see her!!
ReplyDeleteHow adorable are those pictures?!?! What a sweet lady to have made those especially for you :)
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